Our superhero’s fight against RELAPSED Neuroblastoma

Product Description

Australia

Supporters

No word a parent wants to hear is your child has cancer…..

Then once they sign all these forms which you are consenting to your child’s health and risks, to go through intense treatment for 18months…. to get “NED”

Have scan anxiety every 3 months to then learn the word “relapse”

Xavier’s scan results

On the CT, the L) neck one is 9 x 13mm.

The one in his abdomen is 20 x 14mm.

The pathology has come back as Neuroblastoma but no genetics yet…. The interim test shows his bone marrow is still clear

Xavier will be starting treatment next week Chemo and immunotherapy…..

Once we have ALL his result back we will be sending them to the clinics in the US, going to these US clinics means we need to fund it! No parent should have to be worried about raising money to get their child the best possible treatment to survive!

On the 26th of March this year Andrew and I received news that no parent wants to hear.

‘From the abdominal x-ray, we have found a shadow which needs further investigation’

That further investigation turned our entire world upside down as our little boy Xavier, at three and half years of age, was diagnosed with a rare childhood aggressive cancer!

It’s name, Neuroblastoma.

Xavier complained of pain in his tummy, back, hip and chest. This went on for several days and after several trips to GPs and hospitals no conclusive answers were found. ‘It’s a virus’ they said. My instincts knew it was more than that and it wasn’t until our trip by ambulance to the Women’s and Children’s Hospital that the cause of our little super hero’s pain was discovered.

Xavier had more tests and investigations in one week than our whole family has had in a lifetime. X-rays, scans, biopsies and intrusive lines into his little body for fluids and treatment. But like a true super hero he showed incredible courage and fight. He is our own little super hero!

The tumour found is 5.5 centimetres in diameter and is on one of his adrenal glands and unfortunately it has spread into his bone marrow. Before any surgery can take place Xavier needs to endure six cycles of chemotherapy, which started on April 1st, the Thursday before Easter break.

A 12 month intense treatment for CURE is now underway. Xavier will lose his hair, may become lethargic and could get sick from the treatment. But as we know, and what the doctors have said, children are very resilient.

To help Xavier stay as healthy as possible we have transformed our home by removing all carpets, rugs, curtains and the like. Installing a new washing machine, hiring a deep cleaner every week and we also need to install ducted heating to keep a constant temperature throughout our home.

65-75%, that’s the success rate of cure and the only numbers we think of at the moment.

To look after Xavier full-time I will not be able to continue my hairdressing. We will now be on one wage from our plumbing business and that is why we have set up the #ShaveforXave fundraiser so we can have enough funds to investigate further options in Europe or the United States, if treatment here in Australia is futile. This is a fight for Xavier’s life and he is leading the charge through his bravery and resilience and as parents we will do all that is necessary to follow him in this fight and see him through it.

You can help join the fight by shaving your hair or colouring it. Please share your support on our Facebook page – #ShaveforXave – by posting videos and or photos of yourself getting your head shaved or coloured. Xavier is a very social little boy and he would love to see fun, crazy, supportive and positive posts on the page.

We will be hosting other fun activities to help Xavier through this and to raise awareness of this rare disease. Any donations would be greatly appreciated, are 100% tax deductible and any further contributions will go towards other charities that have helped us in this journey.

Thank you for your support.

Wendy Ducat

2 years ago

$100

Richard Miller

2 years ago

$25

Courtney Wauchope

2 years ago

$30

Preema John

2 years ago

$25

Rhys Halliday

2 years ago

$100

Peta Shannon

2 years ago

$50

Rach Diprose

2 years ago

$25

Jenna & Shaun Templeton

2 years ago

$200

Rachael Baum

2 years ago

$200

Jane and Andrew Mccoy

2 years ago

$50

Natalie Bunworth

2 years ago

$100

Sid Kale

2 years ago

$20

Alannah Menzell

2 years ago

$50

Jenny Van Der Veen

2 years ago

$25

Nataly Carrasco

2 years ago

$200

Cara & Matt Jolly

2 years ago

$50

Mel Timmings

2 years ago

$50

Blitz FCD Studios

2 years ago

$2315

Courtney Wauchope

2 years ago

$100

Stacey Bell

2 years ago

$25

Lesley Bunce

All the best wishes to Xavier, he is one tough little boy!! You’ve got this Xavier, you’re such a strong fighter

3 years ago

Danielle Konopka

Scarlett Media